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World Health Organization : Year 1989 ; World Health Organization, Hereditary Disease Program Icf (M) a Wg, No. 89.2: Report of a Joint World Health Organization/ICF Meeting on the Feasibility Study on Hereditary Disease Community Control Programmes (Cystic Fibrosis)

By World Health Organization

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Book Id: WPLBN0000218839
Format Type: PDF eBook
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Reproduction Date: 2005
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Title: World Health Organization : Year 1989 ; World Health Organization, Hereditary Disease Program Icf (M) a Wg, No. 89.2: Report of a Joint World Health Organization/ICF Meeting on the Feasibility Study on Hereditary Disease Community Control Programmes (Cystic Fibrosis)  
Author: World Health Organization
Volume:
Language: English
Subject: Health., Public health, Wellness programs
Collections: Medical Library Collection, World Health Collection
Historic
Publication Date:
Publisher: World Health Organization

Citation

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Organization, W. H. (n.d.). World Health Organization : Year 1989 ; World Health Organization, Hereditary Disease Program Icf (M) a Wg, No. 89.2. Retrieved from http://worldebooklibrary.com/


Description
Medical Reference Publication

Excerpt
1. INTRODUCTION Since the last joint WHO/XCF(M)A meeting on prevention and control of cystic fibrosis ( C ) in Oslo, June 1987, contacts between the two organizations have been maintained. Over tl~c last few years it has become increasingly clear that CF is a common genetic disorder with worldwidc occurrence. In developed countries, it appears that CF is rapidly Cransforminp, fro~n fatal childhood disease to a chronic disorder persisting to adult life. Aluo, r!omprchensive nredical care leads to improved diagnosis. The overall outcome is sti1.l fiit:al and CF rcprcscnts one of the most serious chronic life-threatening conditions

Table of Contents
C o n t e n t s P a g e 2 . MPROACIIES FOR ESTABWSATNG PROGRAElMES FOR THE CONTROL O F C F . . . . . . . . . . . . . . . . . . . . . 2 2 . 1 S c r e e n i n g . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 I 2 . 1 . 1 N e o n a t a l s c r e e n i n g . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 2 . 1 . 2 P r e n a t a l diagnosis . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3 2 . 2 T r e a t m e n t . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .L. 2 . 3 C o s t - b e n e f i t . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 2 . 4 R e s e a r c h needs . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 2 . 5 E d u c a t i o n a l aids a n d training . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 2 . 6 E t h i c a l i s s u e s . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 3. STRATEGIES TO BE FO'OCUIWED IN TIlE ORGANX7ATXON OF CONTROL PROGRAMMES . . . . . . . . . . . . . 6 3 . 1 S t r a t e g i e s i n d e v e l o p i n g c o u n t r i e s with an unknown CF burden . . . . . . . . . . . . . . . 6 3 . 2 S t r a t e g i e s i n d e v e l o p e d c o u n t r i e s w i t h a known CF burden . . . . . . . . . . . . . . . . . . . 7 4 . PROPOShZS AND RECOMMENDATIONS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 5 . LIST OF PARTICIPANTS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 6. REFERENCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10

 

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